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Federal RegisterGuidance and regulationPublished Dec 18, 2025

NIH Controlled-Access Data Policy and Proposed Revisions to NIH Genomic Data Sharing Policy

Updated under an hour ago ()

The National Institutes of Health (NIH) is requesting public input on its proposal to establish harmonized and transparent policy requirements for protecting human participant research data. Specifically, NIH proposes (1) establishing policy requirements for which data should be controlled-access under NIH data sharing policies, and (2) revising the NIH Genomic Data Sharing Policy to simplify and harmonize requirements.

Tags
HIPAA, Notice, Health and Human Services Department, National Institutes of Health
Related exam domains
CISSP 1: Security and Risk Management; CISM 1: Information Security Governance; CISA 2: Governance and Management of IT
Source record id
2025-23246
First seen by InfoSec Signals
Sep 23, 2026

Source: Federal Register API, Office of the Federal Register, National Archives and Records Administration about this source more from it

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